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Join us now and donate to the NBIA Alliance

The NBIA Alliance unites NBIA patient associations from 9 countries working together to achieve common goals. Our work is dedicated to all individuals and families affected by Neurodegeneration with Brain Iron Accumulation. All of us share a common mission: to find better treatments, and ultimately cures for NBIA disorders.

Your donations will help us achieve these goals:

  • Financially support the International NBIA Patient Registry and Biobank
  • Foster research for all NBIA disorders
  • Share information on NBIA and educate the public on these disorders
  • Encourage and support NBIA families, thus strengthening NBIA communities around the world.


We are now able to accept charitable donations for the NBIA Alliance. If you have an interest in financially supporting this vital work to find cures for all NBIA disorders, please click the button below.



We are looking for volunteers to help us raise awareness about NBIA disorders and the work of the NBIA Alliance.
If you are interested in donating your time to this effort with any specific skills you might have, we would love to hear from you at This email address is being protected from spambots. You need JavaScript enabled to view it..

NBIA Alliance members at symposium

NBIA Alliance representatives from left to right: Heike Jaskolka, Hoffnungsbaum e.V., Germany; Francesca Sofia, AISNAF, Italy; Roberta Scalise, AISNAF, Italy; Michelle Whalen, NBIA Canada; Patricia Wood NBIADA, U.S.; Anglika Klucken (on screen), Hoffnungsbaum e.V., Germany; Fatemeh Mollet, NBIA Suisse, Switzerland; Jean-loup Vasseur, AIDNAI, France; and Ovidiu Botezen, NBIA Hungary. Not pictured: representatives from the Netherlands and Spain.