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If you are a researcher whose work is connected to NBIA disorders, or one who simply wants to learn more about these rare disorders, we would like to hear from you.

The Alliance will notify researchers in our database of any NBIA research opportunities available from any of our member organizations, the Alliance itself, or from other sources that we learn about. We will keep you updated on the latest NBIA research news and our work as the umbrella organization for all NBIA disorders organizations around the world.

You may also have an opportunity to participate in our International NBIA Patient Registry and perhaps create a NBIA clinical center to facilitate NBIA research in your country.

International NBIA Researcher Database – Join Now:

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  13. Do you have contact with NBIA individual(s)?(*)
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  14. If yes, what form(s) of NBIA do they have? (Check all that apply)














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  15. I wish to receive information on research grant applications when available
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  17. As a researcher who has seen/is seeing an NBIA individual, I am interested in learning more about participating in the NBIA International Patient Registry (some compensation for participating)
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