English French German Italian Portuguese Russian Spanish

We are looking for motivated individuals who are interested in starting an NBIA organization in their country and being a member of our international NBIA Alliance.

The Alliance members’ agreements comprise the following areas of cooperation:

  • While each country has their own legal entity, we share common goals in helping NBIA families coping with these rare disorders, promoting improved health care with access for all those affected, and supporting NBIA research to find more effective treatments and ultimately cures for these disorders.
  • We are working together on a strategic plan for the future that we all endorse and will implement together.
  • We display the Alliance logo on our websites and in literature to show we are members of a worldwide collaboration.
  • We encourage the growth of NBIA organizations in other countries and strive to help newly developing groups by sharing our knowledge, and being a resource to help them flourish and join our Alliance.

Please share with us some information about yourself and one of our Alliance members will be in touch to explore this opportunity with you:

  1. First Name(*)
    Invalid Input
  2. Last Name(*)
    Invalid Input
  3. Street Address(*)
    Invalid Input
  4. Address Line 2
    Invalid Input
  5. Address Line 3
    Invalid Input
  6. City(*)
    Invalid Input
  7. State(*)
    Invalid Input
  8. Postal Code(*)
    Invalid Input
  9. Country(*)
    Invalid Input
  10. Telephone(*)
    Invalid Input
  11. Email(*)
    Invalid Input
  12. Do you have contact with NBIA individual(s)?(*)
    Invalid Input
  13. If yes, what is your relationship?









    Invalid Input
  14. If Other, please explain
    Invalid Input
  15. Please tell us in a few words why you would like to start an organization for NBIA disorders in your country
    Invalid Input
  16. What is your native language?
    Invalid Input
  17. Are you able to communicate in English?
    Invalid Input
  18. Invalid Input